Exploring the lived experience of Chinese family caregivers caring for end-of-life cancer patients at home: a phenomenological study in Singapore
This study explores the lived experiences of Chinese Singaporean family caregivers providing end-of-life care for terminally ill cancer patients at home. Recognizing that the Chinese community in Singapore faces the highest cancer incidence rates and that family members play a crucial role in caregiving, this research addresses the significant unmet needs of caregivers, which have been underexplored in existing literature.
Using a hermeneutic phenomenological approach guided by van Manen’s (1990) framework, the study conducted in-depth, semi-structured virtual interviews with ten Chinese Singaporean family caregivers. These interviews, lasting 30 to 60 minutes, were transcribed and analyzed to uncover the essential meanings embedded in caregivers' experiences.
Findings revealed two main themes: (1) Experiences from Caregiving, which encompassed sub-themes of being a caregiver, suffering, and well-being, and (2) Expectations in Caregiving, which included caregiving support, decision-making, communication, spirituality, and cultural identity as a Chinese Singaporean.
The study underscores the need for culturally sensitive nursing education, peer support programs, public awareness initiatives, and enhanced training for domestic helpers. Future research should also explore caregiving experiences across different cultural groups and the unique challenges faced by male caregivers to strengthen support systems and empower caregivers in their critical roles.
History
Journal/Conference/Book title
Supportive Care in CancerPublication date
2025-01-17Version
- Post-print